Already I have had offers to ride it with me, offers of Accomodation and simple requests to meet rolling in and of course Lorna will sort it all out for me & I really couldn't achieve this without her.
So here is a quick blog on sort of questions am being asked.
Who is doing it with you? I am presently the only one cycling the whole route but people are committing to doing parts with me & I have Dan my fellow patient being my support driver along with Lorna & Kyle who is only 9 but desperate to cycle parts of the route with me. Of course we will need to assess each part of the route for safety.
How many miles is it? 950 is current estimate which will currently take 15 days with daily cycles of between 50 & 80 miles
Why are you doing it.? Because 8 years ago I was told what was then the perceived "facts" about how a heart failure patient would live their life. I have done my best over the last 8 years to show how heart failure has to be respected but not the major struggle it once was as medical science advances, I also get my device changed next year so it has to be now. Raising awareness of heart failure is something I really believe in.
What is your heart condition? I have what is called Dilated cardiomyopathy which is an enlarged heart, my family has no history of heart problems so was very unexpected, I also have severe atrial fibulation which is a irregular heartbeat although I still have it, as explain next it no longer affects me day to day, and finally when diagnosed I had blood clot in my heart so am high risk for blood clots now so take tablets to thin my blood.
What is your device? I have what is annoying still called a pacemaker but in realty is way beyond that simple description. I have a Crt-P (cardiac Resynchronisation therapy - Pacemaker) that keeps my still heart rate at a steady 70 beats per minute & then during activities will go up in sets of 5 beats to a maximum of 130 BPM and return to 70 when again still, I had what is called my AV Node ablated so my electric pulses in heart is disconnected permanently so device totally controls my heart now & always will.
How can I support you? Accommodation is biggest thing and already getting offers, meet me on route would be brilliant with maybe some local press, like my Facebook page and look at my go fund me page. Basically please get in touch like many have is amazing how kind people have been.
Are you mad? Probably but we only get one life so am just busy living it.
Thanks again
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